When living with a chronic or terminal disease you have to talk about it a lot! I lived at the doctor’s office, I lived in hospitals, the dialogue was always about my disease. That eventually bled into all of my conversations with family, friends, people I had just met, etc. Two things happen, in my opinion, you get so used to talking about your disease that it just becomes natural to talk about it, and you become addicted. Just as someone gets addicted to a drug, or trauma, you become addicted to your “disease.” My disease, Lupus, became my crutch and excuse for everything, for all my problems. It was the reason I couldn’t do this or that, it was the reason I was a certain way, or acted a certain way…but it wasn’t. I was swimming in my own sorrow. Of course my disease is limiting, there truly were and are certain things I cannot do, but where did I draw the line… I didn’t.
It’s the first day of fall and I couldn’t be more excited! This is my favorite time of year. Might have something to do with the fact that I am OBSESSED with Halloween. There is just something about fall. In Wisconsin where I’m from the leaves change colors and the air is crisp. It seems the world is filled with pumpkin farms and corn mazes serving hot apple cider, and I can’t think of a time of year I love more. It’s that time of the year for big comfy sweaters, hot chocolate, turning on the fireplace and of course adding in those yoga poses that build heat to warm up, right? Hahahaha 🙂 Let’s get started…
: a group of persons having a common character, occupation, or interest
What does “Tribe” mean to you? What does “Support System” mean to you? To me it’s a group of people who simply care about one another. They’re there for you through thick and thin, sickness and in health… it kind of sounds like I’m describing a marriage, hahahaha 🙂 It could be someone you’ve known for a long time, or someone you’ve just met. It could be family, the one you were born into, or the one you’ve created over time. What matters most is that this “Tribe” or “Support System” is a group of people who support you, that build you up, that make you a better person.
I remember the exact moment of diagnosis like it happened yesterday. I remember the details explicitly; what I was wearing, who I was with, and where I was. My phone rang, caller ID said it was my doctor and my stomach flipped. I was waiting for results of a test that would determine whether or not I had Lupus. I raised the phone to my ear and she uttered results that somewhere inside I already knew where positive, I had Lupus. It was like everything you see in the movies. Everything around me slowed down, noises around me became faint, I took a deep breath, found a place to sit down and told her I’d call her back.
This is the first blog post I’ve ever written. It’s located on my first website that was created for the first business I’ve ever started. A few years back I was living a majority of my life in hospital beds and doctor’s offices with a diagnosis of lupus and a myriad of other ailments. At some point I thought all hope was lost and that all my hopes and dreams were dead. I had officially given up. Everything was a mess. I had to drop out of college, I lost my job, I had to file for bankruptcy because I was drowning in medical bills and I was too sick to get out of bed 90% of the time. I’ll never forget the day I decided to stop feeling sorry for myself.